Dairy is evil

June 25, 2010

I hate dairy, its in everything, and everything it is in is usually delicious. But every time I eat it I get a bad headache (because of my sinuses), and I know this, so I've tried to eliminated it from my diet completely, and it's easy...Until my husband comes home with a cheese cake and he asks you to cut him a slice. Then you get some on your finger...what else are you going to do but lick your finger? Pretty soon you've had about 5 bites, you're thinking to yourself, "Oh my gosh what am I doing?" Yes I did that last night and even after 5 tiny bites I have a throbbing migraine today. To me, dairy is pure evilness, dressed as a lushes sweet temptress topped in strawberry glaze, and as soon as I partake of it, it reaches into my brain and kills everything good inside. Dairy, I'll miss you, but I guess, I won't miss you.

Hello High Blood Acidity, Goodbye Spicy Foods

June 9, 2010

Hello dear readers! Well I went to the doctors yesterday for a routine check up, and I complained about having pain in my chest and upper back. Well apparently I have a high acidic blood level, and the pain was heart burn. And if not treated the high acidity can cause ulcers. So my doctor prescribed me Prilosec which I must take everyday. I'm thinking "wow this is pretty random!" but it does explain the acid reflux that I have been experiencing. So after I got home I did some research on the Internet to find out whether or not it is linked to Osteopetrosis. Sure enough it is. At the website http://www.osteopetrosis.org/ I found that in Osteopetrosis patients, "The blood is slightly acidic and has a high chloride concentration (hyperchloraemic acidosis.) The blood acidity is caused by excessive leakage of bicarbonate from the kidney tubules (renal tubular acidosis)." Well, that's new information to me. So I guess I must be consistent with taking my Prilosec now, and stop eating spicy food! I don't know how I'm going to do that! One of my favorite foods is a good spicy plate of chicken curry. At least at the Chinese restaurant that I order from the curry is spicy, I don't think the Thai Chicken curry is spicy, so there may be hope after all. But Ricky (my husband) insists that I stop eating all spicy food! He is so good at watching out for his little wifey.

Apart from frequent bone fractures I never knew that Osteopetrosis could cause so many problems in just one little body. Oh well, The Lord is my Strength, and He will continue to help me overcome any and every obstacle that may come my way!

Vitamin D and The First Day of Summer vacation!

June 2, 2010

So, last night I couldn't sleep at all because my mind was working a million miles per hour thinking of all the things I want to do during summer break. Well Today is my first day of freedom and I'm so tired haha. I even have made a list of all the things I want to accomplish before fall semester comes around. I want to paint, I have so many blank canvases that I have accumulated over last semester that are just crying out to be used. I want to start drawing again, but not just with graphite or pencil, I want to go out and buy some high quality colored pencils and explore with colored drawings =). I also have a goal to find a really great book and read it over the summer, I'm thinking Jane Eyre, do you have any suggestions for me? And I seriously just want to take a whole day to do nothing but lay in bed and watch TV shows and movies. I also want to go camping with my hubby and friends, and then go down to LA and visit my sister. oooh man I have such high hopes for this summer, I reallyyy need this time to decompress from everything.

As far as the health aspect of my life, I have been taking vitamin D supplements for about 2 weeks now. I was researching my disease some more and found a little something that mentioned how taking Vitamin D may help stimulate my Osteoclast cells! Well this made perfect sense to me because as a pre-nursing student I am learning in Anatomy that your bones store calcium, and when your organs and intestines need Calcium it is the Osteoclasts' job to resorb (take out) the Calcium from the bones and send it into the gut where it can be used. Well! vitamin D is the one responsible for telling the Osteoclasts to resorb the Calcium, thereby stimulating the Osteoclasts! Well, who knows if this will actually stimulate them in my case, it may be something a lot more complicated than that, but it never hurts to try!

I Am Forever Unbreakable: by Lynsie Petig

May 27, 2010

I will not surrender, I will not break

This burden on me will never take


Fragile or weak are the words some might use to describe me

But my strength is found in The One Everlasting


In my heart and in my mind

You will never find a fragile disposition of any kind


This world may break my physical self, leaving me feel depleted

But my spirit cannot be broken nor, can it ever be defeated


I may endure pain and my heart may momentarily ache

But I am invincible despite what some might think


I will never fail to rise again

No matter the challenge, I will always win


When you look at me don’t perceive fragility

For my spirit is threaded with a woven pattern of invincibility


So Look at me and see strength, and let your vision be stable

For I am now, and forever will be, unbreakable.
 
 
by Lynsie Petig

Scheduling A Surgery

May 25, 2010

Wow, so its a longgggg and tedious process scheduling an out patient surgery! All the surgeries I have had  have all been emergency/in patient ones. Plus, when your special bone Dr in Standford says to you that you can only have surgery by a highly specialized ENT (ear nose and throat) Dr. because your case is so rare, but your insurance will only pay for a crappy Dr down here It get even more complicated (seriously they're not the best down here, they're only here so they can play golf in pebble beach. Of course this is just my experience, I'm sure there are good Doctors here I just havnt had the pleasure of seeing them). Although, my insurance stated that they will cover my surgery at Standford only if they have written proof that my Dr actually said that I can only have surgery up there. So that's what I am doing now, calling Standford and leaving billions of messages for people to call me back, and people are getting all confused about what this letter is....Ive been very clear about what this letter is, I mean you understand don't you?

More on the doctors down here: I once hurt my leg and just to make sure I didn't break it again I went to the local Hospital here. The Doctor looked at my x rays and mistook my old fracture for a new one and started planning a surgery and to put me in a partial body cast known as a Spica cast (which Ive had like a thousand times lol). Well what he didn't know was, that in Osteopetrotic patients old fractures don't heal fully like a normal break would. In a normal bone after it heals all evidence of a fracture is gone. But in my case you can still see the line on my bone where it had broken and healed. Turns out all I did was pull a stinkin' muscle, so yeah, my confidence about having surgery down here is shot. Id even give the guy some credit if it wasn't for the fact that even Doctors who are not educated about my disease can just tell by looking at my x rays that my bones are not normal, they just don't know what it is, and he didn't even notice that.

So for now the waiting continues, Ill update you on more when something happens lol.

Tomorrow's My Birthday!

May 18, 2010

So tomorrow's my 23rd Birthday! discounting some broken ribs and a surgery, it will be 6 whole years since I have broken any major bones in my body! Wow, It feels so stinkin amazing to say that. Tomorrow should be amazing. My hubby Ricky just finished secretly wrapping my birthday presents that hes more excited for me to open than I am, I think haha. well ttyl! next time I write I will be a whole year older haha.

PS. No headache today! yay!

I am Having Surgery

May 17, 2010

So lately I have been struggling with terrible headaches, (which is a common symptom of Osteopetrosis due to nerve compression). I used to get bad headaches so I would take something like Excedrin Migraine. It really did work....for a while. Then my headaches got REALLY bad. like the worst migraine you could ever imagine times 50! So my doctor gave me a prescription for Sumatriptan Succinate, which is extremely powerful (and expensive). It was like an answer to my prayers! it worked so well! until I started having sinus problems, and started getting sinus headaches, which my new, very powerful medication didn't treat. So I had an CAT scan and they found that I have "Hypoplastic sinus cavities" I was like great! just what I need, something else to go wrong! So your sinus cavities are hollow cave-like spaces formed out of bone inside your skull. And hypoplastic means they are "underdeveloped", meaning because of my Osteopetrosis, the bone is getting thicker and filling in my sinuses. This causes them to be unable to drain themselves, so I get sinus infections super easily and also have baaad sinus headaches! So dear readers, I have to have surgery to enlarge my sinus cavities! They have to "burn" them open. I don't really know what this entails, all I know is that its a 2 hour surgery and after I will be able to smell the burned away bone in my head. That's so crazy, I can just imagine that its going to smell something like hair smells when you burn it, really bad. So Ill keep you posted on when my surgery will be, and anything else. Later guys.